Ever since I can remember, kidney disease has been a normal topic in our family. My grandfather got his kidney transplant around the time I was born & my mother got hers over five years ago. It was always in the back of my mind that I could have it.
I have no recollection of the day or even the manner in which I was told I had the Carroll kidney disease, which is how I thought of it at the time.
I am hopeful that the brilliant geneticists, biologists, and physician-researchers studying rare kidney diseases will find a treatment in my lifetime and HALT this disease from further ravaging my family tree.
The uncertainty and fear that come with this diagnosis are overwhelming, but we are determined to stay proactive, hopeful, and to help raise awareness.